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My son died 2005 after 3 years with legal hands this is the conclusion im am to be settled with……
He had 2 routine op’s in 1 week for an internal bleed, they said he has portal hypertension.and not liver desease his liver had extra vien backing back roads
Beginning of week in theater to put camera down throat the reading’s from theatre looked level and consistent….but could not see a thing due to blood. 2nd time camera to go in the rear , 9.20am anesthetics came informed he go about Pam, but platelets level low must have some before theater,, lady came to do bloods couldn’t find a vein and my son refused to have needle in foot, lady got frustrated and left, I then prepared hand with cream an plaster to try for bloods again.. she never did… I started new job so hubby was watching him,,,, I asked two top doctors and several nurses repeal to authorize platelets’ I left a lap still not done.. he had a drip with actinide in it empty when I left he been on that during the whole stay… hubby called to say at theater but camera broken had to wait her to be fixed. as going into theater doctor asked nurse had he had platelets she replied ‘I don’t know’ he said ‘its your job to know… my son requested the mask to go to sleep but not working so injected.. no platelets ordered or bloods .. I don’t wasn’t to quote times all medical not with me today … looking at the reading from theater looks totally different from other.. approx started at 2.41… they ordered bloods after 3pm and he 0 pos they gave him o neg,,,,they say platelets where given but on notes staff have to write they were added in after,,,, the stats went down shortly after they try to revive for an hour then told my hubby he died……I have all his medical note’s on death cert they put portal hypertension on post mortem they changed it to pulmonary portal hypertension all organs in immaculate condition apart from lungs…. I have every piece of info if required……
Hospital for Children
NHS Trust

National & UK Centre and Service for
Pulmonary Hypertension in Children

McMillan Williams

Dear Sirs,

I am PD Dr Ingram Schulze-Neick. I am a Consultant Pediatrician and Pediatric Cardiologist at Great Ormond Street Hospital, and I am clinically and academically leading the NCG-sponsored National Service for Children with Pulmonary Hypertension, for which we are the reference centre.

I have been asked to review the case of DN-J as an independent reviewer with the question as to whether a case can be made of serious misconduct and negligence from the side of the health carers, ie. Kings College Hospital NHS Trust.

I have been sent 2 big folders (the “bundle”) which contain the records of the hospitals: Guys’ and St Thomas’, Croydon, Mayday, Milton Keynes General, King’s College, the GP’s records and Correspondence, and the Coroner’s Report. I notice that the documentation is confusing and in wild order, for instance, King’s and Milton’s documentation is mixed, and also not in any chronological order, ie. 2004 follows 2005 follows 2004 again, and within these, there are reports from Guy’s and St Thomas’ report. I further note that the boy’s name is indeed , and the mother’s name is as opposed to to what in your letter in your letter(s).

In Partnership with the Institute of Child Health, UCL

Patron: Her Majesty The Queen

Chairman: Sir Cyril Chantler MA MD FRCP FRCPCH FMedSci

I shortly summarize the case as follows.

The patient died 16th of March 2005 during unsuccessful resuscitation during general anesthesia required for colonoscopy because of GI bleeding. The cardiovascular collapse is attributed to the severe pulmonary vascular changes which were found on autopsy. The existence of such severe pulmonary hypertension including the pulmonary vascular changes was unknown at the time of the above procedures.

The GI bleeding was seen as a consequence of his advanced liver disease. His liver disease was diagnosed following his admission in Milton Keynes for a first episode of haematemesis and abdominal pain August, 2008. Subsequently, the diagnosis of portal hypertension was made (by OGD, 21st August, King’s College Hospital).

An Echocardiogram was requested at that time and performed 10th of September 2008 as an outpatient of Dr Qureshi and Dr Aphrodite Anagnostopoulos-Tzifa. The specific findings were a structurally normal heart with slightly dilated pulmonary arteries and a tricuspid regurgitant jet indicating a peak right ventricular pressure around 36 to 60 mmHg which is mild-to-moderate pulmonary hypertension. Dr Que
The case with its problems and with the questions of the mother is well
I am trying to answer the remaining aspect which is whether the diagnosis of severe pulmonary hypertension could not have been made earlier so he would not have died, and whether anything within the accepted clinical routine has been significantly and wrongly omitted.

Are there flaws in care from the side of the Liver Service of King’s?
Portopulmonary hypertension in children is very rare. The current literature as of 9/2008 does not indicate how often it occurs in children with portal hypertension, nor does it delineate the dynamics of this side aspect, ie. how quick or aggressively pulmonary hypertension develops in what child with portal hypertension. In other words, while a liver service in children on the basis of the current knowledge can be expected to be aware that portal hypertension is associated with pulmonary hypertension, it is neither in the routine knowledge nor even known in the literature how

first I want to pass you my heartfelt condolences,when we lose a loved one we need to know or at least believe that the medical profession has done everything human possible to take care of our precious loved one.Obviously people working within our health service are human beings and mistakes can occur, sadly though most doctors nurses and other so called health "care" professionals will never ever admit they have made a mistake most mistakes are covered up and if they come to light to the patient or their relatives HCP do all they can to make it nigh impossible for anyone to examine the facts,We have been programmed through the past sixty yrs to treat NHS staff and GPs as special cases, special people as if they are not accountable and as if we should accept without Q every thing they do or say as being right,The medical profession is no different to any other profession we have bad builders, vets,electricians,plumbers, hairdressers etc etc medics are no different some are good others are bad but we are conditioned to believe they are "called to tend the sick" special people WRONG it is time we realised not all are killers like Harold Shipman or Beverley Allitt but there are manyhundreds who treat or loved one with much less that we should expect from their profession.
I hope and pray that the truth surrounding your beloved son which has not been admitted by those responsible will come to light and those responsible will be found and that they get the judgement they deserve but I fear that you will not get that this side of heaven,they cannot hide the truth from God, I pray for you and your family and for your son.I hope God will grant you a measure of peace and the knowledge that he is now at peace.

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